PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.

One estimate suggests that up to 1 in 200 children suffer from this condition.

Resources for parents including diagnostic criteria and details of local support groups.

Resources for Medical professionals

Resources for teachers and Schools

Teacher training package

Facebook group for parents/caregivers

Facebook group for Young People age 12-17 with the condition.

Facebook group for Adults

Links to further Research

Advocacy and support from the charity

Opening time notes

All of Cambridgeshire covered. We provide support via our Facebook group PANS PANDAS UK. Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

Opening times

  • Monday:12am – 11.59pm
  • Tuesday:12am – 11.59pm
  • Wednesday:12am – 11.59pm
  • Thursday:12am – 11.59pm
  • Friday:12am – 11.59pm
  • Saturday:12am – 11.59pm
  • Sunday:12am – 11.59pm
Availability:
All Year
Bank Holidays
Evenings
Full Time
Half Term
Inset Days
School Holidays
Shiftwork Hours
Term Time
Weekends

Eligibility

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Referral

Self-referral,  Education provider (consent obtained), SEND Specialists and Educational Psychologists.

https://www.panspandasuk.org/for-educators

  • Cost: Free at point of access, supported through the PANS/PANDAS UK Charity.
  • Age range: 4 - 19

Last updated on: 23/11/2021

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